haea.org
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1. US Hereditary Angioedema Association - HAEA
Link: https://www.haea.org/
Description: WebHAE is a very rare and potentially life-threatening genetic condition involving swelling of various parts of the body, hands, feet, or face. Our association is a community of people affected by HAE and their loved ones who are leading the fight in HAE research, advocacy and finding a cure.
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2. US Hereditary Angioedema Association
Link: https://www.haea.org/pages/p/what_is_hae
Description: WebHereditary Angioedema, or HAE, is a very rare and potentially life-threatening genetic condition that involves recurrent attacks of severe swelling (angioedema) in various parts of the body, including the hands, feet, genitals, stomach, face and/or throat. Swelling in the airway can restrict breathing and be fatal.
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3. Management of Hereditary Angioedema - HAEA
Link: https://www.haea.org/pages/p/treatment_guidelines
Description: WebContact us to find a physician in your area with HAE experience who can make a diagnosis. We are dedicated to provide support and information on Hereditary Angioedema (HAE) to both patients and physicians, including information on recently FDA.
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4. HAE TREATMENTS > - US Hereditary Angioedema Association - HAEA
Link: https://www.haea.org/pages/p/treatments
Description: WebThe US HAEA Medical Advisory Board has developed evidence-based recommendations for the diagnosis and treatment of HAE. If your doctor is unsure how to treat you or your loved one, please contact an HAE Advocate at 866-798-5598, who can help you get in touch with an HAE expert physician in your area.
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5. US HAEA Angioedema Center at the
Link: https://www.haea.org/pages/p/angioedema_center
Description: WebFrom research in genetics to the most advanced treatments, the Angioedema Center is at the forefront of angioedema research, developing promising new therapies and making them available to angioedema patients not only in the US, but throughout the world. Visit The Center's Website to Learn More.
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6. About Us - US Hereditary Angioedema Association - HAEA
Link: https://www.haea.org/pages/p/mission
Description: WebAbout Us. The US Hereditary Angioedema Association (HAEA) is a 501 (c) (3) non-profit advocacy and research organization serving people living with the rare genetic condition, Hereditary Angioedema (HAE), and their families. Founded and staffed by people with HAE and caregivers, the US HAEA is committed to actively engaging our community in a ...
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7. US Hereditary Angioedema Association
Link: https://www.haea.org/pages/p/research
Description: WebADVANCE HAE SCIENTIFIC REGISTRY. We curate a confidential nationwide database of HAE attacks and symptoms, which is the driving force behind new HAE research and discoveries. Learn More. We are dedicated to provide support and information on Hereditary Angioedema (HAE) to both patients and physicians, including information on recently FDA.
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8. US HAEA Medical Advisory Board 2020 Guidelines for the …
Link: https://www.jaci-inpractice.org/article/S2213-2198(20)30878-3/fulltext
Description: WebUS HAEA Medical Advisory Board 2020 Guidelines for the Management of Hereditary Angioedema. Scientific and clinical progress together with the development of effective novel therapeutic options has engendered multiple important changes in the diagnosis and management of hereditary angioedema (HAE). We now update and extend the 2013 …
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9. Hereditary Angioedema: Causes, Symptoms, and Treatment - WebMD
Link: https://www.webmd.com/skin-problems-and-treatments/hereditary-angioedema
Description: WebSep 18, 2023 · Hereditary angioedema is a rare disorder identified by episodes of swelling under the skin, gut lining, and the lungs. Learn its triggers, treatments and more.
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10. Meet The US HAEA Team - US Hereditary Angioedema Association
Link: https://www.haea.org/pages/p/our_haea_team
Description: WebMeet The US HAEA Team. The US HAEA team is a group of dedicated advocates who are committed to achieving the mission of increasing HAE awareness and education, empowering patient access to suitable treatment, and fostering ground-breaking research that can ultimately lead to a cure. LEARN MORE ABOUT OUR IMPACT.
